Rare Genomics Institute arranged my son’s genome sequencing; I was interviewed in the following articles & presentations about our family’s experiences on behalf of RGI:
“With Insurers Reluctant to Pay for Genomic Testing, Some Patients Turning to Crowdfunding,” by Monica Heger, GenomeWeb, August 4, 2015
TEDxMidAtlanic Conference, October 2013, interviewed in talk ("Start Now") by Dr. C. Jimmy Lin, Founder, Rare Genomics Institute, on rare disease and genomic medicine, Sidney Harman Hall, Washington DC.
“Kickstarting a Cure,” by Noah Rosenberg, Narratively, July 18, 2013 (reprinted in Salon, July 25, 2013)
“Prick My Baby's Foot: Whole genome sequencing at birth can catch rare genetic conditions & help early treatment,” hosted by Nancy Redd, HuffPost Live, January 8, 2013
“Jimmy's kids,” by Virginia Hughes, Johns Hopkins Magazine, December 3, 2012
“How do traditional and social media converge to help those with rare diseases?,” by Mary E. Harris, Sound Medicine, WFYI Indianapolis (NPR podcast), November 18, 2012
“Orphan diseases find a champion,” by Melanie Ave, Faith & Leadership (Duke Divinity), August 14, 2012