PRESENTATIONS

• Caring Across Maryland, press conference, January 24, 2024, spoke on the need for a Caregiver Tax Credit, Annapolis MD.

• Maryland General Assembly, February 2023, testimony in both Senate and House in favor of a Rare Disease Advisory Council, Annapolis MD. Measure passed into law.

• Maryland General Assembly, February 2023, testimony in both Senate and House on behalf of Caring Across Maryland, in favor of a Home Care Medicaid Rate Increase and a Home Care Registry, Annapolis, MD.

• Care Is Essential Day of Action on Capitol Hill (SEIU), May 5, 2022, spoke on behalf of Little Lobbyists on the need for increased funding for Medicaid Home and Community-Based Services, Washington DC.

• Maryland General Assembly, March 2022, testimony in both Senate and House on behalf of the Self-Direction Advocacy Network, in favor of a Self-Directed Services Act, Annapolis MD. Measure passed into law.

• Care Coalition: Home and Community-Based Services Vigil, October 7, 2021, spoke on behalf of Little Lobbyists to share “Caregiving is Infrastructure” stories, Washington DC.

• Maryland Senate, Maryland General Assembly, January 16, 2020, testimony on behalf of Little Lobbyists in favor of SB-44 (Public Buildings: Changing Facilities for Adult Diapers), Annapolis MD.

• Maryland Assembly Joint Committee on Children, Youth & Families, November 20, 2019, “Survive & Thrive?: Challenges to Keeping Medically Complex Young Adults in Their Communities,” testimony on long-term care issues, Annapolis MD.

• 2nd International Conference on Disability Studies, Arts & Education, October 3-5, 2019, “Monster: DNA & Identity,” Moore College of Art & Design, Philadelphia PA.

• Tax the Rich Bus Tour Press Conference, sponsored by Tax March, July 10, 2019, National Mall. Spoke on behalf of Little Lobbyists on my family's experience with health care and drug prices. 

• U.S. Senate Democrats FaceBook Live, “Senate Democrats on Republican Healthcare Sabotage,” June 24, 2019, U.S. Capitol. Spoke on behalf of Little Lobbyists on my family's experiences with pre-ACA health care.

• Protect Our Care, U.S. Senate Press Conference, April 30, 2019, convened by Senators Chris Murphy, Bob Casey, and Doug Jones, U.S. Capitol, Washington DC. Spoke on behalf of Little Lobbyists, "Why Medicaid Matters."

• Rare Action Network, February 28, 2019, Rare Disease Day Panel Discussion: "Caregiver Challenges," United Way of Frederick County, Frederick MD.

• Rockville City Council, February 26, 2018, “Robert & Rare Disease,” remarks after accepting the council’s Rare Disease Proclamation on behalf of the National Organization for Rare Disorders (NORD), Rockville MD.

• The George Washington University School of Physical Medicine, April 21, 2017, “Pediatric Physical Therapy: The Parent Perspective,” guest lecture for The Management of the Pediatric Client/PT8320, Marisa Birkmeier, assistant professor, Washington DC. 

• Amplify Hope: Crowdfunding in Genomics, Empowering Patients in Their Journey, January 2016, “Rare Disease Patients: Is the Fault in Our Stars?,” Rare Genomics Institute, Four Points Sheraton, San Diego CA.