Jeneva Burroughs Stone,

Busily Seeking, Redux

Recent & Upcoming

2/26/18: Robert and I accept the Rockville City Council's Rare Disease Day Proclamation on behalf of the National Organization of Rare Disorders

About Robert

This video introduces my son Robert, who has a rare disease--it took 14 years for our family to find a diagnosis. We never quit, and neither does Rob. He loves the limelight, so take a look! 

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