Jeneva Burroughs Stone,
Author

Busily Seeking, Redux

Featured: "Writing, Identity & DNA"

8/21/18 Who Lives Like This: Jason, Elizabeth and Jeneva had a lively discussion about the labyrinthine path to diagnosis, the conflict of knowing or not knowing what's happened to your child and the randomness of rare genetic mutations that might be "discovered" but have no applicable treatments. 

Etc.

Podcasts & Video

About Robert

This video introduces my son Robert, who has a rare disease--it took 14 years for our family to find a diagnosis. We never quit, and neither does Rob. He loves the limelight, so take a look! 


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