Photo: B. Farbo
Jeneva Stone is a poet, essayist & advocate. Her essays & poems have appeared in New England Review, American Poetry Review, JAMA, Waxwing, Split This Rock, Scoundrel Time, & many others. She is the recipient of fellowships from MacDowell, Millay Arts, and Virginia Center for the Creative Arts. Her opinion writing has been featured in The Washington Post, CNN Digital & AmericaBlog.com. Jeneva is a graduate of Middlebury College. She holds an MFA in poetry from Warren Wilson & a PhD in English Renaissance literature from Columbia University.
Jeneva & her son Rob volunteer for several health care & disability rights groups. They are members of Little Lobbyists, a family-led organization advocating for the health care needs of children with complex medical needs and disabilities. Jeneva is the Little Lobbyists blog manager. Both she & Rob are members of the Self-Directed Advocacy Network (SDAN). Jeneva & Rob have delivered remarks at U.S. Senate press conferences, at health care rallies & have testified before the Maryland General Assembly.
Jeneva has recently been appointed by the governor to Maryland’s Rare Disease Advisory Council. She also serves on the Montgomery County, Maryland, Commission on People with Disabilities, and is the Maryland Community Ambassador for the Rare Action Network, part of the National Organization for Rare Disorders.
EDUCATION
The Arc of Maryland Partners in Policymaking Program, 2020
Warren Wilson MFA Program for Writers, MFA 2007, poetry
Columbia University, PhD 1994, English, Renaissance literature
Middlebury College, BA 1986, English/creative writing, magna cum laude
AWARDS
Virginia Center for the Creative Arts Fellow, March 2023, nonfiction
GrubStreet Center for Creative Writing, Access for Students Who Are Caregivers to People Living with a Disability Merit Award, 2020
MacDowell Fellow, April/May 2012, nonfiction
Millay Colony Fellow, September 2012, Wallace Foundation Fellow, nonfiction
White House Champions of Change nomination, 2015, in Precision Medicine
Pushcart Prize nominations, 2016, 2014, 2007, 2020
Mellon Fellowship in the Humanities, 1987-88, 1988-89; Dissertation Fellowship, 1992
ACTIVITIES: ADVOCACY & ARTS
Maryland Rare Disease Advisory Council, council member, 2023 — present
Little Lobbyists, Blog Manager and member, 2018 — present
Rare Action Network (RAN), Maryland Community Ambassador, 2021 — present; Community Engagement Liaison, 2019 -- 2021
Montgomery County Commission on People with Disabilities, commissioner, September 2021—present
Self-Directed Advocacy Network, member, 2019 — present
Bethesda Teen Writers Group, co-leader, a program of the Maryland Writers Association and the Montgomery County Public Libraries; assistant editor for teen anthology, Emerging Voices, 2016—2018
CAREGIFTED, curator for The Giver is Gifted blog, 2016 — 2018
Pentimento: A Journal of All Things Disability, contributing editor, 2015 – 2016