Black & White photo of a white woman with short hair in profile, looking pensive.

Photo: B. Farbo

Jeneva Stone is a poet, essayist & advocate. Her essays & poems have appeared in New England ReviewAmerican Poetry ReviewJAMA, WaxwingSplit This RockScoundrel Time, & many others. She is the recipient of fellowships from MacDowell, Millay Arts, and Virginia Center for the Creative Arts. Her opinion writing has been featured in The Washington PostCNN DigitalAmericaBlog.com. Jeneva is a graduate of Middlebury College. She holds an MFA in poetry from Warren Wilson & a PhD in English Renaissance literature from Columbia University.

Jeneva & her son Rob volunteer for several health care & disability rights groups. They are members of Little Lobbyists, a family-led organization advocating for the health care needs of children with complex medical needs and disabilities. Jeneva is the Little Lobbyists blog manager. Both she & Rob are members of the Self-Directed Advocacy Network (SDAN). Jeneva & Rob have delivered remarks at U.S. Senate press conferences, at health care rallies & have testified before the Maryland General Assembly.

Jeneva has recently been appointed by the governor to Maryland’s Rare Disease Advisory Council. She also serves on the Montgomery County, Maryland, Commission on People with Disabilities, and is the Maryland Community Ambassador for the Rare Action Network, part of the National Organization for Rare Disorders.

White woman wearing a trench coat stands on the back steps of the White House, decorated for Christmas.

EDUCATION

  • The Arc of Maryland Partners in Policymaking Program, 2020

  • Warren Wilson MFA Program for Writers, MFA 2007, poetry

  • Columbia University, PhD 1994, English, Renaissance literature

  •  Middlebury College, BA 1986, English/creative writing, magna cum laude

AWARDS

  • Virginia Center for the Creative Arts Fellow, March 2023, nonfiction

  • GrubStreet Center for Creative Writing, Access for Students Who Are Caregivers to People Living with a Disability Merit Award, 2020

  • MacDowell Fellow, April/May 2012, nonfiction

  • Millay Colony Fellow, September 2012, Wallace Foundation Fellow, nonfiction

  • White House Champions of Change nomination, 2015, in Precision Medicine 

  • Pushcart Prize nominations, 2016, 2014, 2007, 2020

  • Mellon Fellowship in the Humanities, 1987-88, 1988-89; Dissertation Fellowship, 1992

White woman & her son (who uses a wheelchair) pose with sunglasses in a green field with trees.

ACTIVITIES: ADVOCACY & ARTS

  • Maryland Rare Disease Advisory Council, council member, 2023 — present

  • Little Lobbyists, Blog Manager and member, 2018 — present

  • Rare Action Network (RAN), Maryland Community Ambassador, 2021 — present; Community Engagement Liaison, 2019 -- 2021

  • Montgomery County Commission on People with Disabilities, commissioner, September 2021—present

  • Self-Directed Advocacy Network, member, 2019 — present

  • Bethesda Teen Writers Group, co-leader, a program of the Maryland Writers Association and the Montgomery County Public Libraries; assistant editor for teen anthology, Emerging Voices, 2016—2018

  • CAREGIFTED, curator for The Giver is Gifted blog, 2016 — 2018

  • Pentimento: A Journal of All Things Disability, contributing editor, 2015 – 2016