Author & Advocate

About Me

Photograph of author Jeneva Burroughs Stone

Background

Jeneva Stone's creative work has focused recently on the disabled body as a source of wonder, the emotional impact of biological difference on families, and on integrating the sciences of genomics and physics with literature. She's been a caregiver to her son, Robert, for 20 years. He has a rare disease and life-altering disabilities.


Jeneva has recently become active with several social justice advocacy groups, assisting her son Rob with his career and volunteer plans. This work has enriched her writing and her experiences of disability, politics and social change.



EDUCATION 


  • Warren Wilson MFA Program for Writers, MFA 2007, poetry 
  • Columbia University, PhD 1994, English, Renaissance literature 
  • Middlebury College, BA 1986, English/creative writing, magna cum laude  

Awards

  • MacDowell Colony Fellow, April/May 2012, nonfiction: memoir
  • Millay Colony Fellow, September 2012, Wallace Foundation Fellow, nonfiction: lyric essay   
  • White House Champions of Change nomination, 2015, in Precision Medicine  
  • Pushcart Prize nominations, 2016, 2014, 2007 
  • Mellon Fellowship in the Humanities, 1987-88, 1988-89; Mellon Dissertation Fellowship, 1992  

Activities: Advocacy & arts

  • Little Lobbyists, member, 2018 -- present
  • Rare Action Network, Community Engagement Liaison, 2019 -- present
  • Montgomery County Developmental Disabilities Work Group, leader of subcommittee on medically complex young adults, 2019 -- present
  • Bethesda Teen Writers Group, co-leader, a program of the Maryland Writers Association and the Montgomery County Public Libraries; assistant editor for teen anthology, Emerging Voices (2016—2018)  
  • CAREGIFTED, curator for The Giver is Gifted blog, representing caregiver voices in the arts; assist with fundraising (2016 -- 2018)  
  • Pentimento: A Journal of All Things Disability (shuttered 2016), contributing editor (2015 – 2016)  
  • Tupelo Press 30/30 Project, Volunteer Fundraiser (February 2014)
  • Alice James Books, Volunteer Fundraiser and Public Relations Volunteer (2003 — 2008)   
  • Juror, Moving Words Poetry Competition 2008, Arlington VA