Photo: Rah Foard
NPR Story: 2022
Rob & I were featured in this NPR/KHN story, “Americans with disabilities need an updated long-term care plan, say advocates”
“No one will just sit down and tell me what is going to happen to my son,” she says. “You know, what are his options, really?”
RARE DISEASE DAY 2023
Photo: Rah Foard
Rob & I were featured in this Rare Disease Day story on WMAR, Baltimore: “Maryland Doctors: Be Aware of Rare Diseases.”
My essay, “Remaining Silent: The Facts,” published in APR, was listed as a “Notable Essay of 2020” in Best American Essays 2021
Rob’s Rare Disease Story
